This category only includes cookies that ensures basic functionalities and security features of the website. A medical blog will typically provide information about common medical concerns. In Greece, although most health professional believe that informing patients is very important, they avoid speaking with them about their diagnosis. So I nixed a few touches that werent vital to the piece. Beste J. Instilling hope and respecting patient autonomy: Recording apparently conflicting duties. You need to consider where your content falls in thebuyers journey. However the following issues could be very helpful: Balancing hope with honesty is one of the most important skills of the art of medicine. Being able to confide in doctors their fear, they may improve their ability to cope with their suffering (Beste, 2005). But you have to use some common sense," Pollick said. Cox A, Jenkins V, Catt S, Langridge C, Fallowfield L. Information needs and experiences: an audit of UK cancer patients. chapter 18 critical thinking medical billing and coding - Quizlet When a physician examines a patient in the context of an independent medical examination, in keeping with ethics guidance. "It behooves you to put a lot of time and space between you and an incident that has made you upset, even if it's only 24 hours.". De Pentheny OKelly C, Urch C, Brown E. A. Recognize the forms of hope that are possible even in the face of a serious or terminal illness (, disclosure, truth, autonomy, cultural influences, ethics, hope, cancer. You can ask for it at your local library or neighbourhood bookshop (please support your favourite independent bookseller) or order it online (paperback, hardcover or e-book) at Amazon or order it directly from my publisher, Johns Hopkins University Press (use their code HTWN to save 30% off the list price). In addition, informing someone of a bad prognosis, by many physicians is interpreted as a confession of inability to provide the right cure. Another useful exercise is to simply type your topic into Google and see what comes up. In most cases, youll see what are known as People Also Ask queries. Balcony Roses: A Bare-Root Rose? When presenting statistics, include a chart or graph to provide a visual representation. 2019 Mar;50(1):129-135. doi: 10.1016/j.jmir.2018.09.005. HHS Vulnerability Disclosure, Help HHS Vulnerability Disclosure, Help National Library of Medicine It will also provide suggestions on related terms that are trending or increasing in popularity. At the same time, withholding the truth can damage the relationship between the doctor and the patient. "If people can connect the dots and draw correct conclusions of who the patient is, then it can be [a HIPAA violation]," said Pollick. Federal government websites often end in .gov or .mil. Health Computing Chapter 4 4.9 (9 reviews) Get a hint 1. government site. Especially in societies where families have strong bonds, withholding is perceived as a duty of protection of the ill member. Is there any information they are lacking? That could mean asking the reader to schedule an appointment, but be careful not to ask them to do something they arent ready for. Its also important to include a disclaimer that medical blogs are not intended to be used for diagnosis or treatment and that anyone experiencing a medical condition should consult their doctor. However, according to many physicians, severe illness can compromise a patients capacity for autonomous decision-making, because the experience of pain, fear and anger, prevent them from taking in all the relevant information. By Angilee Shah November 11, 2011 The Health Insurance Portability and Accountability Act of 1996 scares a lot of health professionals away from blogging and joining social media discussion because of its provisions protecting patient information. Significant others (relatives) can be involved but only according to patients choice (Baile et al., 2000). Patients frequent find out the truth through media sources and Internet, which many times are not reliable. You should never blog about people. Or, for that matter, on a reality TV show. Lubinsky M. S. Bearing bad news: dealing with the mimics of denial. Clear guidelines must be integrated in the academic education of health care professionals, as also in their continuous in-service education. Freedman B. Field D. Special not different: General practitioners accounts of their care of dying people. Especially in crowded hospitals where a private place is difficult to find (Shahidi et al., 2007). S, Martn-Fernndez R, de la Vega E. F. How to provide care for patients suffering from terminal non-oncological diseases: barriers to a palliative care approach. Blog/web log - a new easy and interactive website building tool for a non-net savvy radiologist. Noone I, Crowe M, Pillay I, OKeeffe S. T. Telling the truth about cancer: views of elderly patients and their relatives. Sapir R, Catane R, Kaufman B, Isacson R, Segal A, Wein S, Cherny N. I. FOIA Truth, Disease, and Prognosis. Top Medical Blogs | SGU Medical Blog - St. George's University I told her that it might help others in similar situations. What are their socioeconomic status and education level? More important than ever right now. This can give to the patient a higher level of emotional holding, especially when the doctor offers availability and encourages the patient to call for any reasons (Narayanan et al., 2010). Would love your thoughts, please comment. S, Vila Real M, Mesquita N. F, Maia-Goncalves J. P. Quantity and quality of information desired by Portuguese cancer patients. All the medicines you take, including prescription and over-the counter medicines, as well as vitamins, herbs and other supplements, and the doses. "[The judge] said throwing them out of school was probably more disruptive than putting the picture up," Pollick said. As always, most of the residents are budding personal essayists and many wrote true-life narratives about their patients. Blogs can be a very effective way of building your brand and attracting new patients, but its important to understand how medical blogging works and how to do it correctly. These patients appreciated being able to express their feelings and received support from their readers. For example, don't comment on a patient's status update about a health problem by asking, "Are you taking your medications?" S, Huang H. L. The attitude toward truth telling of cancer in Taiwan. Besides, it is impossible for the patient to get a knowledge equivalent to that of a doctor, while in many cases this could be incomprehensible. I first had to demonstrate in advance to the conference organizers some semblance of credibility as a patient blogger so theyd know I wouldnt be wasting both their time and the time of the busy conference presenters I wanted to interview. 2015 Apr 8;17(4):e87. Get it out to your audience. Breaches of patients privacy are often made worse by how institutions handle incidents, he said, citing the case of Doyle Byrnes, a nursing student who was dismissed for posting an image of a patient's placenta on Facebook. This was her story, too. Trust unsettling may also have a bad influence on patients adherence to therapy, which is crucial for its effectiveness (Kazdaglis et al., 2010). Disclosing the truth to terminal cancer patients: a discussion of ethical and cultural issues. You cannot promise that your services or treatments will cure any condition or disease. You get a lot of people to follow. Consider filming a short video that presents many of the key points in your content by using bullet points or other graphics. Someone reading about the differences between seasonal allergies and COVID symptoms may simply be gathering information and isnt looking to schedule an appointment at this time. However, since nowadays the issue of telling the patient the truth about their diagnosis and treatment options is approached differently in various countries, while there is still no global consensus on it (Georgaki, Kalaidopoulou, Liarmakopoulos, & Mystakidou, 2002; Tieying, Haishan, Meizhen, Yan, & Pengqian, 2011). Photo by Angilee Shah], "It doesn't necessarily have to be 100 percent true. McAllister's blogging rules apply to podcasting and video podcasting, Davis said. cataloging the image An EHR specialist is training a newly hired staff member when a patient who is receiving inpatient care dies. After her death, I spent months cobbling our encounter into a narrative, rich with detail about how her illness had come to define her life, what she looked like, how she sounded. The integration of nursing, computers, and information science for the management and communication of data, information, knowledge, and wisdom is: a. nursing informatics. When trying to create a list of topics, the best place to start is often your existing patients. Psychological disturbances can be common, both in patients who were informed directly and in patients who guessed it through the course of their illness (Fallowfield et al., 2002; Atesci et al., 2004). Patients rightly assume that their conversations with healthcare providers are confidential, and while theres an implied consent that relevant information may be noted in the medical record, no one expects a rendition of a seemingly privileged conversation to appear in a magazine or newspaper article. Your Google Analytics can tell you exactly how much of your website traffic comes from mobile devices. It is mandatory to procure user consent prior to running these cookies on your website. Don't be afraid of HIPAA, say nurse bloggers You can also increase the trustworthiness of your content by having it medically reviewed for accuracy. Balcony Roses: So Far, So Good (April), 9. Truth telling can also contribute in the achievement of therapeutic efficacy. "BEST HEART BLOG ON THE WEB!" Definition 1 / 60 D. disciplinary measures for addressing resistance by professionals. a) Physical examination b) Progress notes c) Physician order d) Medical history Click the card to flip B). Two years later, I read it again and decided to contact the ex-wife one more time. Only one out of six knew that cancer was metastatic, while none of them had had a disclosure session with their doctor (Shahidi, 2010). Balcony Roses: New Buds AND Black Spot, 14. A number of years ago, I wrote an essay about an elderly woman, a patient of mine. Of course the importance of providing information for each patient is based on his/her preferences regardless of sex, age, cultural and social background and a number of specific factors that are different for each person (Fallowfield et al., 2002). 2005. And yet, all these years and many personal essays later, there remains a niggling sense that maybe I shouldnt be exposing the inner lives of my patients, that even with a patients okay, even after a careful resection of sensitive elements, I may have taken advantage of a confidence. Different platforms attract different audiences, so focus your efforts on where your target audience is most likely to be spending their time. These cookies will be stored in your browser only with your consent. Balcony Roses: What Causes Weak Stems? Its important to understand that most people wont read your content in its entirety. A good content writing company will also do the work of editing your content and ensuring that it adheres to your unique voice and brand guidelines. Similar, in Japan only a small percentage of doctors (13%) talk openly with cancer patients about their diagnosis. This presupposes a certain level of communication skills and emotional capability, as a result of focused and appropriate training (Faulkner, 1998). They felt strengthened by supportive encounters with health professionals, relatives, friends, and from their blogging. Maybe? Preferences of cancer patients regarding the disclosure of bad news. Balcony Roses: Planting the First Roses (March 2022), 5. Social Media and Health Care Professionals: Benefits, Risks, and Best Afterwards, the cultural context and the differences between various countries will be presented in a summary form. While it may feel like a very narrow focus to tailor your content directly to a 34-year-old work-from-home mother of three, specificity in marketing is essential for reaching the right audience and building mutually beneficial relationships with them. Accessibility Beginning from the setting up stage, professionals must arrange for some privacy and manage time constrains and interruptions. Please enable it to take advantage of the complete set of features! But most journals offer no guidance. Although it is not easy to extract a general assumption, the literature suggests that while most patients want to take more information, there is a substantial minority who prefers to avoid it (Kazdaglis et al., 2010). As a library, NLM provides access to scientific literature. It is also your key to getting inside the Media Room usually a separate quiet area where youll have access to desks, printers, phones, private interview space, and helpful staffers who can help you book interview appointments with the specific speakers/researchers you want to meet or can offer suggestions for good human interest story idea you may have overlooked in the conference program. 1Faculty of Nursing, Technological Educational Institute, Lamia, Greece, 2Centers for the Prevention of Addictions and Promoting Psychosocial Health of Municipality of Thessaloniki, Thessaloniki, Greece, 3Faculty of Nursing, Technological Educational Institute, Larisa, Greece. Its when a piece starts to shine as potentially publishable that things get tricky. Arthritis patient advocate, speaker and a, To which patient advocate, speaker (and also a. Bethesda, MD 20894, Web Policies All Case Examples | HHS.gov Pimentel F. L, Ferreira J. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. According to the Institute for Healthcare Communication, evidence indicates that there are strong positive relationships between a health care team member's communication skills and a patient's capacity to follow through with medical recommendations, self-manage a chronic medical condition, and adopt preventive health behaviors. How long does it take to heal from open heart surgery? Launching July 1, 2024, the 10.5-year model will improve care management and care coordination, equip primary care clinicians with tools to form partnerships with health care specialists, and leverage . My dream closet - all done do you like it? Required fields are marked *. (July), 11. Dilemmas and circumstances which correlate with there different perspectives (physicians, patients and relatives perspective), as also other elements that increase difficulties, will be examined. A good truth telling technique could have positive effects on their prognosis and quality of life, reducing emotional pressure and maintaining their sense of hope (Tang et al., 2013). In the specific field there are contradictory data. The literature suggests that issues surrounding hope in the context of breaking bad news are too complex. Informatics Final Flashcards | Quizlet Short vs long online articles: which are better? Retrieve from: Yardley S. J, Davis C. L, Sheldon F. Receiving a diagnosis of lung cancer: patients interpretations, perceptions and perspectives. Need help with your medical content strategy? http://creativecommons.org/licenses/by/3.0/, Georgaki, Kalaidopoulou, Liarmakopoulos, & Mystakidou, 2002, Tieying, Haishan, Meizhen, Yan, & Pengqian, 2011, Panagopoulou, Mintziori, Montgomery, Kapoukranidou, & Benos, 2008, Tang, Fang, Chun-Kai Fang, & Fujimori, 2013, Mystakidou, Parpa, Tsilila, Katsouda, & Vlahos, 2004, http://dx.doi.org/10.1007/s00520-003-0585-y, http://dx.doi.org/10.1634/theoncologist.5-4-302, http://dx.doi.org/10.1136/bmj.313.7059.729, http://dx.doi.org/10.1111/j.1467-8519.2005.00438.x, http://dx.doi.org/10.1111/j.1749-6632.1997.tb48095.x, http://dx.doi.org/10.1177/026921639400800107, http://dx.doi.org/10.1016/j.ejon.2005.10.007, http://dx.doi.org/10.1191/0269216302pm575oa, http://dx.doi.org/10.1016/S0277-9536(97)10041-7, http://dx.doi.org/10.1001/archinte.1993.00410050012003, http://dx.doi.org/10.1111/j.1749-6632.1997.tb48067.x, http://dx.doi.org/10.1097/00002820-200212000-00006, http://dx.doi.org/10.1111/j.1445-5994.2004.00673.x, http://dx.doi.org/10.1016/j.ijpsycho.2010.04.001, http://dx.doi.org/10.1111/j.1365-2702.2006.01460.x, http://dx.doi.org/10.1111/j.1749-6632.1997.tb48111.x, http://dx.doi.org/10.1097/00002820-200304000-00009, http://dx.doi.org/10.1177/0269216310380296, http://dx.doi.org/10.1046/j.1523-5394.1998.006003153.x, http://dx.doi.org/10.1007/s00520-003-0552-7, http://dx.doi.org/10.4103/0973-1075.68401, http://dx.doi.org/10.1200/JCO.2007.12.8751, http://dx.doi.org/10.1001/jama.1996.03540060072041, http://dx.doi.org/10.1111/j.1365-2354.2009.01100.x, http://dx.doi.org/10.1191/026921600676888353, http://dx.doi.org/10.1007/s00520-003-0579-9, http://dx.doi.org/10.1111/j.1365-2702.2012.04361x, http://dx.doi.org/10.1016/S0889-8588(02)00022-9, http://dx.doi.org/10.1177/0969733011398096, http://dx.doi.org/10.1016/S0022-3999(03)00566-X, http://www.wma.net/en/30publications/10policies/l4, http://www.wma.net/en/30publications/10policies/c8/, http://dx.doi.org/10.1191/026921601680419429. 2, 3 These studies were done several years ago and need to be updated. You can enter any topic into this tool and see how the interest in it has changed over time. Besides, nowadays, it is too difficult to hide the diagnosis through the whole process of treatment. To make your content appeal to your ideal customer or patient, its critical to pinpoint their needs and speak directly to them. Bethesda, MD 20894, Web Policies Ask Well, a column that taps physicians and other experts to answer common health questions, is another highlight of the blog. But if you put your real name on your blog, you might think a bit more critically about what you publish, which in turn will help you have more coherent and HIPAA-compliant posts. Dr. Stephen Parker, For women living with heart disease, from the unique perspective of CAROLYN THOMAS, a Mayo Clinic-trained women's health advocate, heart attack survivor, blogger, author, speaker on the west coast of Canada , Book Sale! document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Thanks for writing this. and transmitted securely. HIPAA Quiz Flashcards | Quizlet Difficulties to handle patients emotional reactions. Patient bloggers at healthcare conferences: real journalists? Your past blog I rang the bell and no one came we are pretty much on our own I fear so we as patients and women need to stick together and support one another. But non-disclosure is a common practice and in some Western societies where family bonds are too strong. Narayanan V, Bista B, Kochy C. BREAKS Protocol for Breaking Bad News. b. computer science. Kendall S. Being asked not to tell: nurses experiences of caring for cancer patients not told their diagnosis. Byrnes challenged her dismissal in court and the story became national news, which placed the placenta photo, since removed from Facebook, all over the Internet. The Educational Utility of Blogging for MRI Technologists. Strong influence of the principle of beneficence. Learn more about my presentations. Click the card to flip ANS: A Patients who are not informed may fail to get the right medical support. How old are they? Changes in doctor-patient relationship are impressed in a numerous of official declarations. Then, the main factors that contribute to non-disclosure of diagnosis will be presented. Post it on your social media channels with a link to your website, and include it in your next email newsletter. She was glad to hear from me, but a bit baffled. The paternalism of Chinese doctors is based in the perception that disclosure could make patients feel hopeless and helpless (Jiang et al., 2007). I waited. Through the review of relevant literature, an attempt to examine the trends in this issue worldwide will be made. If you have an existing website that already has content on it, try Google Analytics to give you some insight into what is already bringing users to your site, and what sort of information they are looking for. Correspondence: Dr Pavlos Sarafis, Technological Educational Institute, Lamia, Greece. Korec S, Andrasiova M. Telling the truth yes? Yes! Are you interested in starting a blog for your medical practice or facility? On the contrary, realistic information, concerning different aspects of treatment may lead to more appropriate medical support and to patients adherence to the therapeutic schemes (Clayton et al., 2008; Kazdaglis et al., 2010). Research has shown that physicians do not feel comfortable taking away the hope from patients, while there is also a strong fear of not knowing how to handle patients emotional reactions (Lin et al., 2003; Surbone, 2004). Once your content is live, dont just let it sit there! Retrieve from: WMA. If you havent already set up Google Analytics,set up your Google Search Consoleso that you can see how your website is currently ranking for search queries in your industry. Current researches suggest that in many cases patients interpret hidden information as health professionals withhold bad news (Fallowfield, Jenkins, & Beveridge, 2002; Tattersall, Butow, & Clayton, 2002). When she answered the phone, I summarized my essay. Right now, we need both: patient bloggers who will qualify for media accreditation to cover medical events for their readers, and patients in the audience/at the microphones/onstage to represent the patient voice. To illuminate experiences of living with life-threatening diseases as described in blogs and the experience of blogging about these matters. Faulkner A. UK: Nelson Thornes, 1998; 1998. The .gov means its official. Now, I could omit details that made it more likely someone might recognize her. Making Care Primary (MCP) Model | CMS Innovation Center Moreover, it is an attempt to foster hope and to protect patients from unpleasant and difficult emotions. "I tell people it's ok to friend your patient [on Facebook]. AMA Principles of Medical Ethics: I,II,IV,VIII Must Have Medical Disclaimers 6. You cannot make false medical claims or any guarantees about outcomes. The importance of the Patients Included movement cannot be overestimated, as I also wrote about here. I wrote about this in a post a while ago, but basically, we need patients to be out and presented as patients if we want the practice of involving and listening to patients to become more accepted and adopted. She is referring to what system. 1. Then I urged them to think about power in the doctor-patient relationship, and whether asking for permission to share a story in a personal essay is enough to remedy the moral ambiguity. Health professionals must tailor their approach to individual needs, since each one of the patients consists of a different occasion. On June 8, 2023, the Centers for Medicare & Medicaid Services (CMS) announced a new voluntary primary care model - the Making Care Primary (MCP) Model - that will be tested in eight states. Toss them into charged situations and see what happens. Exploring women's beliefs and perceptions about healthy eating blogs: a qualitative study. Factors related to doctors, patients and their close environment, still maintain a strong resistance against disclosure of diagnosis and prognosis in terminally ill patients, while cultural influences lead to different approaches in various countries. Careers, Unable to load your collection due to an error. and more. However an absolutistic approach is often not helpful. Besides, in this country legislation allows non-disclosure (Kazdaglis et al., 2010). The respect for patients autonomy imposes presenting all treatment options, explaining risks in terms that he/she understands and ensuring that after understanding he/she will agree to all necessary procedures. Truth-telling and patient diagnoses | Journal of Medical Ethics Before Although bad news is always bad, however it is said, the way of conveying has a crucial effect, not only to the patient, but also on the care-giver (Narayanan et al., 2010). Empowerment of patients adherence to therapy. In recent decades most physicians accept as ethical the proposition that patients are entitled to know the whole truth about their diagnosis (Freedman, 1993; Field, 1998). The best medical writing companies have already done the work of vetting their writers to make sure they understand the unique considerations of medical blog writing. Besides, apart from declarations, in most western countries there is a legal requirement for doctors to inform patients of their condition, options and material risks of treatment. Most professional websites these days have a blog, although it might be called something different, such as news or latest stories.. (March), 3. Results: Indeed, since nowadays there is a number of cancer patients who still want the doctor to have a dominant role in decision-making (Butow, Tattersall, & Goldstein, 1997). The use of weblogs within palliative care: a systematic literature review. Conclusion: Ethical aspects of truth telling. ", Terri Pollick, also known as Mother Jones, RN, is the blogger behind Nurse Rached's Place. This site needs JavaScript to work properly. Empathic response consists of four steps: observing for all emotions, identifying them by name them to oneself, identifying the reason for it and letting the patient know that we have understood him/her, through a statement that can reflect it (Ptacek & Eberhardt, 1996). Epub 2018 Nov 16. The majority of the doctors indicate that they need clinical guide-lines for truth telling, while more than the half suggested the need for relevant in-service education (Grassi et al., 2000; Tang et al., 2013). The piece was published and well-received. (March), 4. Health Informatics J. The https:// ensures that you are connecting to the Dont leave your reader hanging at the end of your blog post; invite them to do something. They searched for hope and acceptance, and tried to manage their life. Lack of information is perceived as a factor that can increase a patients uncertainty, anxiety and distress. 1. She hesitated, then said that my patient would have done anything I asked him to, so she supposed it would be okay. Balcony roses: Who do you love? The only exception to this is in emergency situations, where a patient cannot provide consent and delay in treatment would result in death (Schwartz, Preece, & Hendry, 2002). Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. "I'd love to blog about every single patient who come through the doors in the ER. I really appreciate reading your perspective, Kim although its even more discouraging when medical professionals themselves observe this lack of interest in womens issues. Moreover, according to the literature, withholding the truth can result in patients being as upset as they were lied to (Baile et al., 2000). A patient alleged that a covered entity failed to provide him access to his medical records. Truth telling does not mean that health care professionals must simple disclose all the information bluntly in one session. Even if patient blogs can be used in health care, research and education, there is a lack of research studies that have examined the benefits of using blogging for any of these purposes.
a patients blogging of their medical condition quizlet
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a patients blogging of their medical condition quizlet